Olivia Story's Story
"Our Little Fighter"
About the Trust
Olivia's trust fund was set up in 2006 because some of Kims Friends had
a collection for Olivia whilst she was still in hospital. This
snowballed into more people Kim knows getting money for their birthdays
instead of presents and donating it to Olivias fund. Our friends and neighbours also added to this and we quickly realised that we needed to set up a trust as even minor things we had to buy which aren't provided by the NHS cost a lot of money.
The Trust consists of myself and Kim (Olivia's parents) Cliff Mcknespiey (a local businessman) and Jennie Mcknespiey.
We have a legal trust document and the use of a charity number by kind permission of the meningitis help charitable trust. This enables businesses to donate to us and use it as a tax break.
The aim of the trust is to enable us to have enough money for the equipment and prostheics Olivia needs as she gets older, an example of this is the wizzybug powered chair, this was not available on the NHS and cost us £2500.
Currently the NHS are able to provide us with the prosthetics (legs & arm) Olivia needs, but as she gets older, she is going to want realistic looking limbs - this is very expensive. A pair of legs funded privately can cost £12500 and she needs AT LEAST 2 pairs a year. We envisage she will want these from about age 13 but may be sooner.We don't want there to come a time where she needs a pair of legs and we haven't got the money to pay for them...
There have been many generous people who have gave up their time and/or money to help us and we try to recognise them wherever possible, check out the thanks page
We are more than happy to answer any questions about the trust or meningitis or Olivia (some people don't like to ask, but it is fine!)
If you would like to speak to us or donate some money, or hold an event then please use the contact page here
Alternatively, you can email Mike here or Kim here if you would prefer to speak to us, then please give us a call on 01228 532287 and leave a message.
We have a legal trust document and the use of a charity number by kind permission of the meningitis help charitable trust. This enables businesses to donate to us and use it as a tax break.
The aim of the trust is to enable us to have enough money for the equipment and prostheics Olivia needs as she gets older, an example of this is the wizzybug powered chair, this was not available on the NHS and cost us £2500.
Currently the NHS are able to provide us with the prosthetics (legs & arm) Olivia needs, but as she gets older, she is going to want realistic looking limbs - this is very expensive. A pair of legs funded privately can cost £12500 and she needs AT LEAST 2 pairs a year. We envisage she will want these from about age 13 but may be sooner.We don't want there to come a time where she needs a pair of legs and we haven't got the money to pay for them...
There have been many generous people who have gave up their time and/or money to help us and we try to recognise them wherever possible, check out the thanks page
We are more than happy to answer any questions about the trust or meningitis or Olivia (some people don't like to ask, but it is fine!)
If you would like to speak to us or donate some money, or hold an event then please use the contact page here
Alternatively, you can email Mike here or Kim here if you would prefer to speak to us, then please give us a call on 01228 532287 and leave a message.